NewStats: 3,261,380 , 8,173,841 topics. Date: Thursday, 29 May 2025 at 05:04 AM 5q6n2v

6z3e3g

Confused And Heartbroken: My Son Was Diagnosed With Sickle Cell Anemia - Health (5) - Nairaland o2s29

Confused And Heartbroken: My Son Was Diagnosed With Sickle Cell Anemia (21349 Views)

(4)

Go Down)

Zico777(m): 2:21am On May 17
BlueStripper:
Dear OP,

This is indeed a very sad experience and I can only imagine how you feel.

Please don't over-flog yourself. Medical Quackery is something we are yet to address in Nigeria.

Now back to the issue at hand. We will look at it from two sides:

1. If you are financially stable and really want to have healthy children with your wife in the future, then you must for preimplantation genetic diagnosis (PGD) whenever you want a child. Do not have much children because this process isn't cheap. So maybe 2 children.

2. If you are not financially stable but you want children, then father from outside and bring it home. Also make sure your wife truly understands the situation at hand and agrees to your plan.

DO NOT DIVORCE YOUR WIFE OR MAKE HER PAY FOR WHAT SHE KNOWS NOTHING ABOUT. DO NOT TAKE A SECOND WIFE.

As for your son, love him. Just love him. Love will keep him with you for long. But please, do not act in faith and impregnate the mother again or without proper medical counselling and PGD.

I wish you all the best and may Allah help you and your family in this tough time.
What a brilliant and mature contribution!
God bless you Sir.

1 Like

samuelson06(m): 2:46am On May 17
Take the child to Apostle Suleiman in Auchi, Edo state.
louqas: 3:11am On May 17
MufasaLion:


There's nothing like "What God has ed together no man shall put asunder."

You all religious fanatics should stop using God to make people stay in an uncomfortable situation.

When the crisis associated with SCA starts , no matter how strong in faith you are , you just won't be able to do anything, LOVE ISNT ENOUGH.... when Crisis start, them go forget about love .
Tushkid74(m): 3:25am On May 17
Sorry about your predicament.
Don't beat yourself up over the inaccuracy of the first test result.
I know of a person who also suffered the same .
What you need is counseling and and a group.
Don't listen to any advice promising instant spiritual cure.
Try to your wife and limit your family size.
All the best.
livebullet(m): 3:41am On May 17
BlueStripper:
Dear OP,

This is indeed a very sad experience and I can only imagine how you feel.

Please don't over-flog yourself. Medical Quackery is something we are yet to address in Nigeria.

Now back to the issue at hand. We will look at it from two sides:

1. If you are financially stable and really want to have healthy children with your wife in the future, then you must for preimplantation genetic diagnosis (PGD) whenever you want a child. Do not have much children because this process isn't cheap. So maybe 2 children.

2. If you are not financially stable but you want children, then father from outside and bring it home. Also make sure your wife truly understands the situation at hand and agrees to your plan.

DO NOT DIVORCE YOUR WIFE OR MAKE HER PAY FOR WHAT SHE KNOWS NOTHING ABOUT. DO NOT TAKE A SECOND WIFE.

As for your son, love him. Just love him. Love will keep him with you for long. But please, do not act in faith and impregnate the mother again or without proper medical counselling and PGD.

I wish you all the best and may Allah help you and your family in this tough time.

Wisdom ...!
yahoodetector: 3:46am On May 17
YorubaBiafran:
Genotype can be changed if you believe in your CREATOR and Live daily to please HIM. You and your wife should go on 21 Days Fasting and Prayer to Request that Almighty AHAYAH ASHAR AHAYAH should Touch your child and change HIS Genotype. Even when you are not together call her on Phone and make sure you prayed together by 12:00PM and 12:00AM Daily. You will come here to share your Testimony if you follow through with this Advice. I've experienced many Real Miracles that Medical Science said it's impossible.

grin grin grin grin grin grin grin grin grin grin grin 🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣 grin grin grin grin grin grin
yahoodetector: 3:46am On May 17
donsharwama:
It has happened. There's just one option I have for you.

Go to the LORD'S CHOSEN CHURCH(those people that wear green vest) closest to you. I guess they have a headquarters in Abuja. Find your way there on Sunday.

You don't need to see any pastor or talk to anybody. Just one service. And when you are leaving church, go and do the test again. Do for yourself and also for your son.

If the genotype doesn't change, come and quote this post.

All the best.

grin grin grin grin grin grin grin grin grin grin grin grin grin grin cheesy cheesy cheesy cheesy cheesy cheesy grin grin grin grin grin grin grin
Germi9: 4:29am On May 17
There nothing like sickle cell abroad just relocate him there
EmekaA125(m): 4:34am On May 17
donsharwama:
It has happened. There's just one option I have for you.

Go to the LORD'S CHOSEN CHURCH(those people that wear green vest) closest to you. I guess they have a headquarters in Abuja. Find your way there on Sunday.

You don't need to see any pastor or talk to anybody. Just one service. And when you are leaving church, go and do the test again. Do for yourself and also for your son.

If the genotype doesn't change, come and quote this post.

All the best.
Rubbish.
EmekaA125(m): 4:37am On May 17
Chiuzk:
Before I got married, I went for a genotype test, and I was told I was AS. I was surprised because I ed when I was very little, our family doctor told my mother then I was AA. I had to run another test from another state and it was confirmed AA. I really thank God for that because my spouse is AS. Honestly dear, I can only but imagine how sad you're feeling right now with your wife over that little child who did nothing wrong but a mistake from the medical practitioners we have. I can only pray that miracle can still happen for your child for there is no impossibility with our God. Please follow through any useful advice you can get from here with wisdom and understanding. May the Lord heal your family from this trauma.
Quackery full Naija.
olaodun: 4:52am On May 17
Oga I empathize with you , please be kind to yourself, your wife and to your child , for now just take things easy , you and your wife should focus on how to handle the situation and also increase your income because money is needed to care for the new child and seek adequate medical s , Many SS Survive the turbulent years of crises through necessary medical and other s system. About the Future it is between you and your wife , but dont do mstake of adding another SS

1 Like

seanery: 4:54am On May 17
WHEN THEY ASK YOU GUYS TO GO FOR GENOTYPE BEFORE MARRIAGE ,una go allow yeye love to BEcloud una.
Now see wat uVe caused

1 Like

Oakenshield: 5:09am On May 17
BlueStripper:
Dear OP,

This is indeed a very sad experience and I can only imagine how you feel.

Please don't over-flog yourself. Medical Quackery is something we are yet to address in Nigeria.

Now back to the issue at hand. We will look at it from two sides:

1. If you are financially stable and really want to have healthy children with your wife in the future, then you must for preimplantation genetic diagnosis (PGD) whenever you want a child. Do not have much children because this process isn't cheap. So maybe 2 children.

2. If you are not financially stable but you want children, then father from outside and bring it home. Also make sure your wife truly understands the situation at hand and agrees to your plan.

DO NOT DIVORCE YOUR WIFE OR MAKE HER PAY FOR WHAT SHE KNOWS NOTHING ABOUT. DO NOT TAKE A SECOND WIFE.

As for your son, love him. Just love him. Love will keep him with you for long. But please, do not act in faith and impregnate the mother again or without proper medical counselling and PGD.

I wish you all the best and may Allah help you and your family in this tough time.
but OP ever tell us truth before marriage what was is genotype? Same as the wife.
In medical you can't just have AS without it being notice either OP lied to his wife

1 Like

Qadaffi2idiamin: 5:37am On May 17
Quack laboratories in Nigeria has taken more lives than insurgency.

Keep your wife. Your next child will be AS or AA.
ugbarreta(m): 5:59am On May 17
Take that decision you would've taken if you had done a second opinion earlier. A lifetime is to far to live in regrets,pain and confusion. You deserve to be happy and enjoy your marriage. I wish you the best as you make the best decision for yourself and your future generation. A stich in time saves nine.
gabbytabby: 5:59am On May 17
There is a test you can do to test for this. I have a friend who went through similar and had 5 pregnancies with 2 life births cos the test is 50/50 as could result to pregnancy termination even where the foetus is not sickle.

I also had similar experience with the test where I was told at secondary school and university entrance by 2 different places that I was AA when this is not the case.


Mdcool26:



*File photo attached by
DreCharles(m): 6:04am On May 17
Mdcool26:



*File photo attached by

I'm living with Sickle Cell Disorder, 43 years old, almost at the peak of my career, a Chartered ant working in a Federal MDA, and an entrepreneur, married and with a wonderful 10 year old boy.

I'm living my life to the fullest of my abilities; a testimony of how your son can live and cope, with the right care and .

You can Call/WhatsApp 08061269689 if you need to pick my brain on how I'm coping.

Cheers

5 Likes

LtCZAR: 6:07am On May 17
@OP, The following items most be, in your house always

1. ASTHYMIN ( the one that does not contain iron)
2. Folic Acid
3. B- Complex

Please, give it to him everyday, to help his immune system.
Make sure, he avoids cold by any means. No plays inside the rain.
Avoid unnecessary mosquito bites, that would result to malaria and typhoid. So He must always be in his mosquito net when sleeping.
Please do not allow him over work himself. It would lead a break down.
Whenever he complains of ache or cries frequently holding a particular spot, please use hot water and towel to message the place.
Do not panic, when His CRISIS BEGINS, because he's looking up to you the FATHER AND THE MOTHER.

Please, avoid all this miracle center. Oga sir, the genotype will not change. But if you mange him properly, we are always the best in everything we do.

Also note that, growing up, the child will nag a lot, you would wish you should just flush him down the toilet but always make him understand, why he's different.
Before I forget, have a private nurse at hand. Someone you can always reach out to. Because when the crisis comes, and you will need to give them drip or fortwin injection, they can help you, with less charge.

If you keep going to the hospital, there bills will drain you.

Now going forward, you can have another child, to genotype will be favourable but your third child will also carry the SS genotype.
Plan well before you continue after the second child.

Try and any sickle cell group or just reach out here.

Thank you. And my regards to the warrior.

3 Likes

Elusive001: 6:16am On May 17
MufasaLion:


There's nothing like "What God has ed together no man shall put asunder."

You all religious fanatics should stop using God to make people stay in an uncomfortable situation.

What you don't know is bigger than you.
Beremx(f): 6:37am On May 17
BlueStripper:
Dear OP,

This is indeed a very sad experience and I can only imagine how you feel.

Please don't over-flog yourself. Medical Quackery is something we are yet to address in Nigeria.

Now back to the issue at hand. We will look at it from two sides:

1. If you are financially stable and really want to have healthy children with your wife in the future, then you must for preimplantation genetic diagnosis (PGD) whenever you want a child. Do not have much children because this process isn't cheap. So maybe 2 children.

2. [b] If you are not financially stable but you want children, then father from outside and bring it home. Also make sure your wife truly understands the situation at hand and agrees to your plan. /b]

DO NOT DIVORCE YOUR WIFE OR MAKE HER PAY FOR WHAT SHE KNOWS NOTHING ABOUT. DO NOT TAKE A SECOND WIFE.

As for your son, love him. Just love him. Love will keep him with you for long. But please, do not act in faith and impregnate the mother again or without proper medical counselling and PGD.

I wish you all the best and may Allah help you and your family in this tough time.
very stupid advice. So the man should father a child outside and the woman shouldn't? The woman should bear adultery by the husband because it's her fault her husband couldn't his genotype status? You're a wicked soul

1 Like

aysnoopy(m): 6:46am On May 17
mmadu4:
Reason why it's important to do blood test before anything else
So, which kind of test did he do b4? Is it urine test

1 Like

PhardFarm: 6:55am On May 17
Dear Op

I've been married for 11 years and blessed with 2 children. My son is SS and a girl AA. I decided not to end the marriage when we found out about our genotype after our first child because It wasn't my fault neither my wife's fault because we did the right thing but was given wrong results.

Gwagwalada general hospital provides special clinic for sickle cell patients. For your child, it will be Tuesday, with them and follow their guidance, by the grace of God, your child will be fine.

2 Likes

patrickcollins: 7:04am On May 17
gotex:
Bro it's heart breaking but lots of people find themselves in your position due to lab inefficiency. Be calm and show love to your wife and your child. It's not your fault it happened that way, don't feel guilty as well. Take care
Does it mean he never knew his genotype all these years, some people dey try sha
CaptainGo: 7:34am On May 17
Mdcool26:



*File photo attached by

1. How are you just knowing your genotype for the first time? undecided

2. That hospital or lab deserve to be sued.

3. This advice below is solid. Consider it.
BlueStripper:


If you are financially stable and really want to have healthy children with your wife in the future, then you must for preimplantation genetic diagnosis (PGD) whenever you want a child. Do not have much children because this process isn't cheap. So maybe 2 children.


4. There's hope for your child. A cure for sickle cell disease
https://hospital.uillinois.edu/primary-and-specialty-care/sickle-cell/a-cure-for-sickle-cell-disease

https://www.pharmacytimes.com/view/patient-cured-of-sickle-cell-anemia-with-innovative-gene-therapy
lanzini309: 7:35am On May 17
utepu:
Greetings Brother. I empathize with you in this difficult time. It really not your fault. But one thing is certain, God can change your AS status and heal your child.

Go to Divine Hand of God Prophetic Ministry at Area 1 Abuja. Your story will change.

It is free of charge.

Your religion doesn't matter
Sun service start from 8am
Thursday service by 3pm
You will testify



Warm regards,
Some people na slap Una deserve which kind mumu advice be this so the pastor go change the genotype ABI? Abeg for how many months e go take the pastor to change am? We are talking about medical issues you're bringing pastor here religion don cover your brain.

1 Like

jonatoye(m): 7:41am On May 17
We are in a very clever generation but always caught up in our cleverness! What happened to you is an issue of what you feared most has happened to you. Bro! Love and separation do not mix; you claimed to love your wife dearly and the first thing you are thinking is separating from her. Let me ask you this question: What medical test can you do to avoid giving birth to an abnormal child? There are bigger problems in marriage than what you just experienced! You only need to man up and face it. Love is the critical attribute you need now to overcome. It conquer all things! Seek medical help on your child and seek God face on your marriage and stick to whatever instructions God is given you and be sure.


I am saying this because before marriage I was considering leaving my wife because I was AC and my wife was AS; the possibility of SC sickle cell wants to chase me. This question can to me :What medical test can you do to avoid giving birth to an abnormal child? I believe God after prayers we married! The first 5 years we waited for the first child. Now we have two children! One was AS and the other AC. We planned only 2 and God has given us. My counsel to you is the word of God. Prov 3:5-7.


Seek God's face!
Eddypaparazi: 7:42am On May 17
utepu:
Greetings Brother. I empathize with you in this difficult time. It really not your fault. But one thing is certain, God can change your AS status and heal your child.

Go to Divine Hand of God Prophetic Ministry at Area 1 Abuja. Your story will change.

It is free of charge.

Your religion doesn't matter
Sun service start from 8am
Thursday service by 3pm
You will testify

I sincerely seek your honest advice and guidance concerning a deeply personal and challenging situation I am currently facing.

I got married to my wonderful wife two years ago. Before our wedding, we both underwent genotype testing, although in different hospitals—mine was done in Abuja and hers in Lokoja. According to the results at that time, I was told I had the AA genotype, while hers came out as AS. Regrettably, I did not take the step to my result with a second test from another facility.

Early last year, we were blessed with our first child. Shortly after his birth, I secured a job in a federal agency, which required a comprehensive medical evaluation. During this process, I was tested again, and to my surprise, the genotype result came out as AS. I went to another reputable hospital to confirm, and the result remained AS.

Fast forward to a few weeks ago—our son, now a year old, began experiencing swelling in his hands and feet. Initially, we thought it was a minor injury and got him some medication from a pharmacy, but the condition worsened and spread. We had to rush him to one of the top hospitals in Abuja, where he was sadly diagnosed with sickle cell anemia (SS).

As you can imagine, this has been devastating news for me. I’m overwhelmed with emotion, regret, and confusion. I love my wife dearly, but I’m also struggling with the reality of the situation—especially knowing it could have been avoided with more careful steps.

I am reaching out to you all, not to cast blame, but to ask for your heartfelt advice: How do I move forward? Should I continue with the marriage, or should I consider separation?

Thank you for taking the time to read and respond. Your opinions and suggestions will mean a lot to me during this difficult time.

Warm regards,
you don't know what you are talking about. You religious people are part of the reasons sickle cell keep spreading like wild fire.
lanzini309: 7:51am On May 17
Boss the fact remains that you and your wife know that you're both As you guys are just hoping for a miracle. But if what you said is the truth separation is the best option.
Mdcool26:



*File photo attached by
vikstandon(m): 7:53am On May 17
descarado:

Story story.
Maybe you never had a sickler in your lineage.

Truly we've never had, but I have seen who did, and the child lived up to 40years.

The family loved him so well, had other children, and has money.
The boy was also a brilliant chap. They managed the situation well.

Make peace with what is, while still believing in what could be.

You can have other healthy children while managing the present.
cyprex: 7:55am On May 17
I had similar experience
With the help of God, my son who is an SC is doing fine.

I advise that you as follows:

Squeeze pure orange juice enough into a glass more than half glass. Break a raw native egg into the juice and stir properly.

Give this mixture to him at least once in a month.

It is not a cure but it help to keep away attacks

God be with you

1 Like

xavuv: 8:55am On May 17
These ppl shouting 'show love to your wife and child up and down' ... does he have any other choice than to show love since the mistake came from his side

Someone also said he should father a child outside and being same inside. That's gross injustice to his wife. Why not the wife get pregnant from outside and bring same inside grin

My advice: manage the child's crisis very well. Dont lwet your wife get pregnant again. Adoption is cool also. If you are financially stable, very stable, then your options are many.

It is well

1 Like

Reply)

BUDGET OFFICE: 14 Federal Tertiary Hospitals To Receive November Salary Late!

(Go Up)

Sections: How To . 75
Disclaimer: Every Nairaland member is solely responsible for anything that he/she posts or s on Nairaland.