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Confused And Heartbroken: My Son Was Diagnosed With Sickle Cell Anemia - Health - Nairaland 1x5c2q

Confused And Heartbroken: My Son Was Diagnosed With Sickle Cell Anemia (21189 Views)

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Mdcool26(m): 12:13pm On May 11
Dear ,

I sincerely seek your honest advice and guidance concerning a deeply personal and challenging situation I am currently facing.

I got married to my wonderful wife two years ago. Before our wedding, we both underwent genotype testing, although in different hospitals—mine was done in Abuja and hers in Lokoja. According to the results at that time, I was told I had the AA genotype, while hers came out as AS. Regrettably, I did not take the step to my result with a second test from another facility.

Early last year, we were blessed with our first child. Shortly after his birth, I secured a job in a federal agency, which required a comprehensive medical evaluation. During this process, I was tested again, and to my surprise, the genotype result came out as AS. I went to another reputable hospital to confirm, and the result remained AS.

Fast forward to a few weeks ago—our son, now a year old, began experiencing swelling in his hands and feet. Initially, we thought it was a minor injury and got him some medication from a pharmacy, but the condition worsened and spread. We had to rush him to one of the top hospitals in Abuja, where he was sadly diagnosed with sickle cell anemia (SS).

As you can imagine, this has been devastating news for me. I’m overwhelmed with emotion, regret, and confusion. I love my wife dearly, but I’m also struggling with the reality of the situation—especially knowing it could have been avoided with more careful steps.

I am reaching out to you all, not to cast blame, but to ask for your heartfelt advice: How do I move forward? Should I continue with the marriage, or should I consider separation?

Thank you for taking the time to read and respond. Your opinions and suggestions will mean a lot to me during this difficult time.

Warm regards,


*File photo attached by

10 Likes

BlueStripper: 12:37pm On May 11
Dear OP,

This is indeed a very sad experience and I can only imagine how you feel.

Please don't over-flog yourself. Medical Quackery is something we are yet to address in Nigeria.

Now back to the issue at hand. We will look at it from two sides:

1. If you are financially stable and really want to have healthy children with your wife in the future, then you must for preimplantation genetic diagnosis (PGD) whenever you want a child. Do not have much children because this process isn't cheap. So maybe 2 children.

2. If you are not financially stable but you want children, then father from outside and bring it home. Also make sure your wife truly understands the situation at hand and agrees to your plan.

DO NOT DIVORCE YOUR WIFE OR MAKE HER PAY FOR WHAT SHE KNOWS NOTHING ABOUT. DO NOT TAKE A SECOND WIFE.

As for your son, love him. Just love him. Love will keep him with you for long. But please, do not act in faith and impregnate the mother again or without proper medical counselling and PGD.

I wish you all the best and may Allah help you and your family in this tough time.

262 Likes 17 Shares

Akir2025: 12:37pm On May 11
The Spirit of the Lord would Lead you to taking the right Steps

29 Likes

oxygenator: 12:42pm On May 11
Mdcool26:
Dear ,

I sincerely seek your honest advice and guidance concerning a deeply personal and challenging situation I am currently facing.

I got married to my wonderful wife two years ago. Before our wedding, we both underwent genotype testing, although in different hospitals—mine was done in Abuja and hers in Lokoja. According to the results at that time, I was told I had the AA genotype, while hers came out as AS. Regrettably, I did not take the step to my result with a second test from another facility.

Early last year, we were blessed with our first child. Shortly after his birth, I secured a job in a federal agency, which required a comprehensive medical evaluation. During this process, I was tested again, and to my surprise, the genotype result came out as AS. I went to another reputable hospital to confirm, and the result remained AS.

Fast forward to a few weeks ago—our son, now a year old, began experiencing swelling in his hands and feet. Initially, we thought it was a minor injury and got him some medication from a pharmacy, but the condition worsened and spread. We had to rush him to one of the top hospitals in Abuja, where he was sadly diagnosed with sickle cell anemia (SS).

As you can imagine, this has been devastating news for me. I’m overwhelmed with emotion, regret, and confusion. I love my wife dearly, but I’m also struggling with the reality of the situation—especially knowing it could have been avoided with more careful steps.

I am reaching out to you all, not to cast blame, but to ask for your heartfelt advice: How do I move forward? Should I continue with the marriage, or should I consider separation?

Thank you for taking the time to read and respond. Your opinions and suggestions will mean a lot to me during this difficult time.

Warm regards,

What God has ed together no man shall put asunder.
You have to move on from there and learn how to avoid complications from an SS patient. There are many SS living good lives and your case will not be the first.

There are many steps that can be advised to navigate issues arising from an ss.
Get in touch with a physician for help.

HBOT is one method that knowledgeable individuals apply to reduce morbidity and mortality in SS disease.

Do your research and explore ways hyperbaric oxygen therapy (HBOT) can help in many ways not yet envisaged in our environment. HBOT works better and faster.

HBOT PROVIDERS

11 Likes

utepu: 12:44pm On May 11
Greetings Brother. I empathize with you in this difficult time. It really not your fault. But one thing is certain, God can change your AS status and heal your child.

Go to Divine Hand of God Prophetic Ministry at Area 1 Abuja. Your story will change.

It is free of charge.

Your religion doesn't matter
Sun service start from 8am
Thursday service by 3pm
You will testify

I sincerely seek your honest advice and guidance concerning a deeply personal and challenging situation I am currently facing.

I got married to my wonderful wife two years ago. Before our wedding, we both underwent genotype testing, although in different hospitals—mine was done in Abuja and hers in Lokoja. According to the results at that time, I was told I had the AA genotype, while hers came out as AS. Regrettably, I did not take the step to my result with a second test from another facility.

Early last year, we were blessed with our first child. Shortly after his birth, I secured a job in a federal agency, which required a comprehensive medical evaluation. During this process, I was tested again, and to my surprise, the genotype result came out as AS. I went to another reputable hospital to confirm, and the result remained AS.

Fast forward to a few weeks ago—our son, now a year old, began experiencing swelling in his hands and feet. Initially, we thought it was a minor injury and got him some medication from a pharmacy, but the condition worsened and spread. We had to rush him to one of the top hospitals in Abuja, where he was sadly diagnosed with sickle cell anemia (SS).

As you can imagine, this has been devastating news for me. I’m overwhelmed with emotion, regret, and confusion. I love my wife dearly, but I’m also struggling with the reality of the situation—especially knowing it could have been avoided with more careful steps.

I am reaching out to you all, not to cast blame, but to ask for your heartfelt advice: How do I move forward? Should I continue with the marriage, or should I consider separation?

Thank you for taking the time to read and respond. Your opinions and suggestions will mean a lot to me during this difficult time.

Warm regards,[/quote]

12 Likes 2 Shares

gotex: 1:53pm On May 15
Bro it's heart breaking but lots of people find themselves in your position due to lab inefficiency. Be calm and show love to your wife and your child. It's not your fault it happened that way, don't feel guilty as well. Take care

13 Likes

MufasaLion: 1:05pm On May 16
Well, there's absolutely nothing you could do at this point concerning the marriage except you'd divorce her. However, divorce would be too harsh as the fault was never hers nor yours.

Moreover, I'd suggest you stay in the marriage and decide either not to produce offsprings anymore or opt for and adoption. Never try to make babies again.

6 Likes

MufasaLion: 1:07pm On May 16
oxygenator:


What God has ed together no man shall put asunder.
You have to move on from there and learn how to avoid complications from an SS patient. There are many SS living good lives and your case will not be the first.

There are many steps that can be advised to navigate issues arising from an ss.
Get in touch with a physician for help.

HBOT is one method that knowledgeable individuals apply to reduce morbidity and mortality in SS disease.

Do your research and explore ways hyperbaric oxygen therapy (HBOT) can help in many ways not yet envisaged in our environment. HBOT works better and faster.

HBOT PROVIDERS

There's nothing like "What God has ed together no man shall put asunder."

You all religious fanatics should stop using God to make people stay in an uncomfortable situation.

49 Likes 2 Shares

yemre: 3:07pm On May 16
Hi Op,

Sorry, it happened this way. Pls do not blame yourself much because it's not your fault, neither is it your wife's.

As for your son, love him, seek medical advice from reliable medical facilities and practitioners on how best to navigate this as I also know that so many people are having these issues too and are living their lives.

As for your marriage, it depends on what you really want. If you can afford and would prefer to adopt children, fine, go ahead.

But If what you prefer having your own children by yourself, then, you may have to sit your wife down to both analyze your situation and reflect on why you need to go your separate ways and into separate marriages. But make sure your wife understands the whole thing.

It's a very difficult decision I must say, but it is inevitable and better early when you both are still young.

I used to have a very close family friend, whom we attended his introduction and just two weeks to the wedding, it was discovered that they were both AS!

Considering the preparations that have gone into the wedding arrangements, the invitations cards, asoebi already distributed and the love and excitement of the intending young couple, the wedding had to be cancelled, regrettably!

Of course, it took both of them some time to get over it but today they're married to different spouses and are leaving the best of lives.

In essence, we have to make certain difficult decisions sometimes to avoid future regrets. You need to look at this issue, probably consult with some elders and medical practitioners before you conclude.

I wish you the best.

13 Likes 2 Shares

femi4: 8:09pm On May 16
Mdcool26:



*File photo attached by
Don't marry AS if you are one...you no gree

Don't be careless, perform genotype test from 2-3 test centres to be sure of yourself


Carry your cross

5 Likes 3 Shares

mmadu4: 8:10pm On May 16
Reason why it's important to do blood test before anything else

2 Likes

Cjamb: 8:13pm On May 16
All the best
dominique(f): 8:13pm On May 16
mmadu4:
Reason why it's important to do blood test before anything else

Read his OP. He and his wife got tested.

3 Likes

Jughead29: 8:15pm On May 16
This life with challenges here and there, may God be with you and your family. Seek God for decision

4 Likes

Omoawoke(m): 8:15pm On May 16
To your genotype and get your result is not hard



What do you mean you were told?

How come lots of people don’t their genotype from childhood

I’ve known my genotype since I knew myself.. known my blood group and everything

4 Likes

allen113: 8:16pm On May 16
Sorry bro
othermen: 8:16pm On May 16
1.This child, your child, is not a mistake nor a curse, but a soul entrusted to you.

You speak of leaving your wife because you fear another child might suffer. But I ask you: is it love that speaks in you now, or fear disguised as reason?

Marriage is not merely a bond of bodies aimed at producing more bodies. If your concern is unselfish, there is the path to even abstain from further biological children if you choose and love this child that you already have with all your might.

Don’t add to the burden of the child that should feel responsible for your breakup. Your child needs consistent care and would gain significantly from emotional availability of you both.

2.This child, your child, is not a mistake nor a curse, but a soul entrusted to you.

Why do you speak of leaving your wife? If it were your wife that presented thus- would it be your recognition that she deceived you unknowingly? Do you think your child’s condition is a result of your failure? Are these what speaks to you to manifest an escape? Perhaps you are not only heartbroken- perhaps there is also a fracture to the ego- and unable to undo the past, in the present, you find what can be changed- so the divorce is a way to recover control.

All of us would be tempted to flee- but listen, brother.
You were told you were AA. You believed it, and married in peace. You did not lie. You did not intend harm. Take it easy, and May God make it easy.

-

9 Likes

XtraFortunes: 8:17pm On May 16
angry
nosiebaba(m): 8:17pm On May 16
I believe Your son can be helped send me your email

1 Like

YorubaBiafran: 8:17pm On May 16
Genotype can be changed if you believe in your CREATOR and Live daily to please HIM. You and your wife should go on 21 Days Fasting and Prayer to Request that Almighty AHAYAH ASHAR AHAYAH should Touch your child and change HIS Genotype. Even when you are not together call her on Phone and make sure you prayed together by 12:00PM and 12:00AM Daily. You will come here to share your Testimony if you follow through with this Advice. I've experienced many Real Miracles that Medical Science said it's impossible.

6 Likes 1 Share

JAOS(m): 8:18pm On May 16
Don't divorce your wife they are other means of having a child has for your son continue to love him as you can and consult your doctor on ways to manage it

1 Like 1 Share

heykims(m): 8:19pm On May 16
Quite pathetic especially when u do your little part but unfortunately, I got a misleading result.
About your child, truth is it's tough caring for a sickle cell anemia child. Keep to these pieces of advice:
him at a haematology clinic in a reputable hospital
Ensure it takes it water jidiciously, this is very key.
Prevent malaria, with good hygiene and malaria prophylaxis - proguanil

For your unborn children, unfortunately little can be done but PGD during pregnancy can be done to ascertain genotype of the unborn child. Though even at that, the rule of the land forbid abortion in such situation when the unborn child is diagnosed with sickle cell anemia.

About your marriage, I have none to say.

5 Likes

donsharwama(m): 8:19pm On May 16
It has happened. There's just one option I have for you.

Go to the LORD'S CHOSEN CHURCH(those people that wear green vest) closest to you. I guess they have a headquarters in Abuja. Find your way there on Sunday.

You don't need to see any pastor or talk to anybody. Just one service. And when you are leaving church, go and do the test again. Do for yourself and also for your son.

If the genotype doesn't change, come and quote this post.

All the best.

3 Likes

Pweetyccee(f): 8:19pm On May 16
It's well
You and wife need to sit down and discuss and advice each other seriously

1 Like

Pweetyccee(f): 8:20pm On May 16
donsharwama:
It has happened. There's just one option I have for you.

Go to the LORD'S CHOSEN CHURCH(those people that wear green vest) closest to you. I guess they have a headquarters in Abuja. Find your way there on Sunday.

You don't need to see any pastor or talk to anybody. Just one service. And when you are leaving church, go and do the test again. Do for yourself and also for your son.

If the genotype doesn't change, come and quote this post.

All the best.
Lol you are funny 🤣

9 Likes 1 Share

heykims(m): 8:22pm On May 16
utepu:
Greetings Brother. I empathize with you in this difficult time. It really not your fault. But one thing is certain, God can change your AS status and heal your child.

Go to Divine Hand of God Prophetic Ministry at Area 1 Abuja. Your story will change.

It is free of charge.

Your religion doesn't matter
Sun service start from 8am
Thursday service by 3pm
You will testify

I sincerely seek your honest advice and guidance concerning a deeply personal and challenging situation I am currently facing.

I got married to my wonderful wife two years ago. Before our wedding, we both underwent genotype testing, although in different hospitals—mine was done in Abuja and hers in Lokoja. According to the results at that time, I was told I had the AA genotype, while hers came out as AS. Regrettably, I did not take the step to my result with a second test from another facility.

Early last year, we were blessed with our first child. Shortly after his birth, I secured a job in a federal agency, which required a comprehensive medical evaluation. During this process, I was tested again, and to my surprise, the genotype result came out as AS. I went to another reputable hospital to confirm, and the result remained AS.

Fast forward to a few weeks ago—our son, now a year old, began experiencing swelling in his hands and feet. Initially, we thought it was a minor injury and got him some medication from a pharmacy, but the condition worsened and spread. We had to rush him to one of the top hospitals in Abuja, where he was sadly diagnosed with sickle cell anemia (SS).

As you can imagine, this has been devastating news for me. I’m overwhelmed with emotion, regret, and confusion. I love my wife dearly, but I’m also struggling with the reality of the situation—especially knowing it could have been avoided with more careful steps.

I am reaching out to you all, not to cast blame, but to ask for your heartfelt advice: How do I move forward? Should I continue with the marriage, or should I consider separation?

Thank you for taking the time to read and respond. Your opinions and suggestions will mean a lot to me during this difficult time.

Warm regards,
This one needs mental check. Op, please ignore post above.

2 Likes

DMerciful(m): 8:22pm On May 16
How come you did not know about your genotype long before you got married? The one you do before marriage is to reconfirm what you already know, not knowing for first time. Deep down your wife may feel deceived.

Do you have the test that was wrong, can you sue the test center?

Based on the fact that between you and your wife, you're to blame, seek the medical route to have more children but don't leave your wife unless she wants to
Mdcool26:



*File photo attached by

4 Likes 1 Share

aikyg(m): 8:23pm On May 16
It’s unfortunate. If you still have the test result from the hospital where you did your genotype, you may consider taking legal action for damages. At the very least, any compensation awarded could help the child’s care. Be sure to seek a substantial amount in your claim.

2 Likes

Eriokanmi: 8:23pm On May 16
There are medical solutions to it. It's no longer a death threat. Bone marrow transplant is one of it, just that it costs a lot.

Alternatively, to those who have faith like a mustard seed, God can either change it or make you survive it and live a normal life with it, devoid of crisis. My technician,an ibo man from orlu in imo state is a sickler. He's well over 50 years old now. You can't even notice he's suffering from it.
.
He spends one hour daily praying specially for his health. He's been doing that for decades . He's never been transfused. He's also a pastor.

5 Likes

stealmatic(m): 8:23pm On May 16
BlueStripper:
Dear OP,

This is indeed a very sad experience and I can only imagine how you feel.

Please don't over-flog yourself. Medical Quackery is something we are yet to address in Nigeria.

Now back to the issue at hand. We will look at it from two sides:

1. If you are financially stable and really want to have healthy children with your wife in the future, then you must for preimplantation genetic diagnosis (PGD) whenever you want a child. Do not have much children because this process isn't cheap. So maybe 2 children.

2. If you are not financially stable but you want children, then father from outside and bring it home. Also make sure your wife truly understands the situation at hand and agrees to your plan.

DO NOT DIVORCE YOUR WIFE OR MAKE HER PAY FOR WHAT SHE KNOWS NOTHING ABOUT. DO NOT TAKE A SECOND WIFE.

As for your son, love him. Just love him. Love will keep him with you for long. But please, do not act in faith and impregnate the mother again or without proper medical counselling and PGD.

I wish you all the best and may Allah help you and your family in this tough time.

He should not divorce her and not take a second wife but can father a child outside and bring home and xplain to her to understand, oga ur personality and integrity needs questioning, are u really serious? Is it not better for u to shut up? Go back and read ur writeup and come back for lecture

5 Likes

Ademat7(m): 8:23pm On May 16
Hb electrophoresis method remains the authentic method of genotype testing, go to modern lab like(synlab, BeaconHealth, Afriglobal etc) not roadside lab, i don't even trust hospital lab.

It might interest you to know that this method is not even expensive.

I love you is after I know your genotype.

4 Likes

muyico(m): 8:24pm On May 16
Separation is best solution

7 Likes

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