NewStats: 3,261,810 , 8,175,238 topics. Date: Friday, 30 May 2025 at 04:28 PM 3l1x1f

Yemike:
I need people with experience on how to manage SS Crisis.
Both my parent are AS and we the kids are 5. I'm the first child and I'm lucky to be AA, the 2nd born AS, 3rd, 4th, 5th - SS.
I have 3 SS siblings and right now most of their responsibility and wellbeing is on me as the first born cuz my P-man is old already.
Just last week I have to rush down to my brother's school to bring him home cuz he called me in the middle of the night weeping cuz the pain is just too much and his roommate isn't around.
My question now is how can it be managed? cuz it's really affecting everybody cuz It's affecting their studies, I'm exhausted right now cuz anytime it happens it's ends with me borrowing funds to send to them and lastly it's sucks happiness out of the atmosphere as hearing a teenager weeping and knowing you can't do anything about it is saddening.

I've seen some people asking if they as AS can also marry AS please and please don't try it as you'll just be bringing innocent kids here just to suffer. The trauma of you seeing your kids in pain sef no be here.

How can SS Crisis be avoided/managed?

I'd have loved my write up to be well detailed but the little I wrote up there took up to an hour cuz my phone is bad.

You experience and advice will be well appreciated. Thanks.

I can help

Wahala 2 ss better take them to better hospital not quack hospital !!

Heroicvic:
I been think say my own worst
I sympathize with you brother

That's the thing with life, we always think we have it rough until someone share their own story, reason, I keep my story to myself while I wish those going through their hell well.

Life's not a level playing field no matter how we choose to gloss over it. Bad things have happened and worst could still happen but all in all, life goes on.

I can only imagine the pain of the OP and what he's ing through at moment.

DuBLINGreenb:
Bringing back memories of friends gone

Swears!

Lost a friend as far back in ss2. Dude was a sickle cell patient. Brings back memories of friends gone

OP, YOU ARE HAVING A SERIOUS PROBLEM BECAUSE SS CARRIERS ARE PRONE TO ALL KINDS OF SICKNESS.

GOOD NEWS IS:
OUR PRAYERS HAVE BEEN ANSWERED AS GOD HAS CAUSED MEDICATION TO BE FOUND NOW BY RESEARCH AND IT'S USE ALMOST ELIMINATES SICKNESS ON SS CHILDREN.

DARLINGTON869:


You are the one who is actually PLAYING.
Shiloh doesn't change one from SS to AA. It's only God that does, and YES...I have heard of someone whom God gave that testimony to.
Not everyone is faithless

ok ooo

You can go and ask your doctor, he is aware of the doctor of all doctors

ucheuzor1:


Stop playing. Turning SS to AA. Seems like you've taken agbo

Yemike:
I need people with experience on how to manage SS Crisis.
Both my parent are AS and we the kids are 5. I'm the first child and I'm lucky to be AA, the 2nd born AS, 3rd, 4th, 5th - SS.
I have 3 SS siblings and right now most of their responsibility and wellbeing is on me as the first born cuz my P-man is old already.
Just last week I have to rush down to my brother's school to bring him home cuz he called me in the middle of the night weeping cuz the pain is just too much and his roommate isn't around.
My question now is how can it be managed? cuz it's really affecting everybody cuz It's affecting their studies, I'm exhausted right now cuz anytime it happens it's ends with me borrowing funds to send to them and lastly it's sucks happiness out of the atmosphere as hearing a teenager weeping and knowing you can't do anything about it is saddening.

I've seen some people asking if they as AS can also marry AS please and please don't try it as you'll just be bringing innocent kids here just to suffer. The trauma of you seeing your kids in pain sef no be here.

How can SS Crisis be avoided/managed?

I'd have loved my write up to be well detailed but the little I wrote up there took up to an hour cuz my phone is bad.

You experience and advice will be well appreciated. Thanks.

One of my friends' daughter was cured locally in Enugu state like 3 years ago. And the last time we spoke he told the daughter is still doing well without having any crises since then.

Makunahatata:
not surprised ..most of u don run away from that backward enclave ..I repeat,go to a better hospital,this one your genotype dey change..you might be SS ,who knows 😏

You're a fool

Acidosis:


You won't even be able to have a child.

Nairaland is indeed faceless. I wish we all see each other face to face. I don’t blame you.

U can manage them with some steps such as ed them in a good teaching hospitan or any govt hospital that is closer to you. Also, they need to manage any sort of stress either from exam preparation or daily hassles, they should manage Thier time without rushing. They should avoid malaria that is sleeping under mosquito nets. Also u they should be taking enough water and encourage to eat balance diet and enough fruits. Lastly they should reduce all the strenous activities such as playing football but encourage them to do lesss strenous exercise. Let them be going to clinic regularly to check their FBC and they should not be exposed to extreme weather condition either rain or cold . God will be with them










uote author=Yemike post=127244109]I need people with experience on how to manage SS Crisis.
Both my parent are AS and we the kids are 5. I'm the first child and I'm lucky to be AA, the 2nd born AS, 3rd, 4th, 5th - SS.
I have 3 SS siblings and right now most of their responsibility and wellbeing is on me as the first born cuz my P-man is old already.
Just last week I have to rush down to my brother's school to bring him home cuz he called me in the middle of the night weeping cuz the pain is just too much and his roommate isn't around.
My question now is how can it be managed? cuz it's really affecting everybody cuz It's affecting their studies, I'm exhausted right now cuz anytime it happens it's ends with me borrowing funds to send to them and lastly it's sucks happiness out of the atmosphere as hearing a teenager weeping and knowing you can't do anything about it is saddening.

I've seen some people asking if they as AS can also marry AS please and please don't try it as you'll just be bringing innocent kids here just to suffer. The trauma of you seeing your kids in pain sef no be here.

How can SS Crisis be avoided/managed?

I'd have loved my write up to be well detailed but the little I wrote up there took up to an hour cuz my phone is bad.

You experience and advice will be well appreciated. Thanks.[/quote]

Yemike:
I need people with experience on how to manage SS Crisis.
Both my parent are AS and we the kids are 5. I'm the first child and I'm lucky to be AA, the 2nd born AS, 3rd, 4th, 5th - SS.
I have 3 SS siblings and right now most of their responsibility and wellbeing is on me as the first born cuz my P-man is old already.
Just last week I have to rush down to my brother's school to bring him home cuz he called me in the middle of the night weeping cuz the pain is just too much and his roommate isn't around.
My question now is how can it be managed? cuz it's really affecting everybody cuz It's affecting their studies, I'm exhausted right now cuz anytime it happens it's ends with me borrowing funds to send to them and lastly it's sucks happiness out of the atmosphere as hearing a teenager weeping and knowing you can't do anything about it is saddening.

I've seen some people asking if they as AS can also marry AS please and please don't try it as you'll just be bringing innocent kids here just to suffer. The trauma of you seeing your kids in pain sef no be here.

How can SS Crisis be avoided/managed?

I'd have loved my write up to be well detailed but the little I wrote up there took up to an hour cuz my phone is bad.

You experience and advice will be well appreciated. Thanks.

To be frank with you it not easy. My present Woman was a sickle cell patient (HBSS). I Knew before we got married but love push me to marry her because of her beauty. Thou am AA so i believe it won't affect my children.The kind of prayer I do pray as if am a prayer warrior when this pain started. My advice for you is to ask them to take constant water, eat gissa a lot and they shouldn't expose themselves to cold. Use constant Cold water to bath. Make sure they eat what will give them blood to avoid Taking blood cell from the clinic. When the pain start who do take pentatosine but she have to stop to avoud been addicted to it. Constant medicaton been proscribe by their doctor. It shall be well.

Acidosis:


Your parents are very wicked.

Don't seek unnecessary attention by spewing trash.. what if they didn't know

oliverwrites:
You are very dumb and very mannerless. How many of our parents know about Genotype? Most parents in their late 50s today did not do genotype test before marrying.

Don't mind headless attention seeker.

Dumb f*ck.

Zeebuy:

You're a fool

na your papa name be that

EmekaBlue:
Try check ur own again maybe them go discover a new one wey dey below SS... something like ZZ who knows

yenyenyen...better do the needful bfr u cry in future

Emekayoung:

Did he tell you it was done in the east?

yes .. where else quack,fake hospitals dey if not east

Soulifting:
@ DrAda
Pls wat meds are u talking about
Whats the content and active ingredient in these meds
Are they regular marjet drugs or soecially formulated in a particukar place

qquote author=DrAda post=127254075]

I understand. First of all, the meds prevent the pain from ever occuring. All my patients on meds are thriving and none have had a crisis in the past two years.

Infact, they do so well that you would never believe that they have sickle cell in the first place.

I am sorry that you are going through a lot and I sincerely hope that you get the treatment that you deserve

Unfortunately i cant divulge these meds in the public space but I can assure you that any specialist in the field is very much aware of it. Kindly visit your doctor for more details.

money121:
How can husband be AA and wife is AS, and baby is SS? Paternity fraud looming...

Husband is AA, wife is AS. 3 months after they had their first child, they found out their daughter was SS.

At first, it appeared like a joke, a very bad one. Medically, that isn't or shouldn't be possible. They conducted the genotype test in four medical labs, and the result came out the same.

Husband and wife decided to have their genotype test again. Results were the same.

Then it became clear what was happening. Husband ain't the father of the baby. He secretly had a DNA test and it was confirmed he didn't father the baby.

Amidst the confusion, he asked his wife if he fathered the baby. Wife wouldn't confess. She insisted he fathered the baby. It's just obvious that whoever fathered the baby is AS which resulted in the baby's SS.

They went for a paternity test and it was glaring husband ain't the baby's dad. Wife still insisting she didn't get impregnated externally. She went ahead to do another DNA. Result was the same.

Wife became a shadow of herself. Husband got crazy. Their home became a "once upon a time."

Wife kept researching how possible it was that her husband didn't father her baby and the baby's genotype is SS.

Then she told a friend of the whole matter. Her friend just felt she's using female's antics. "Take responsibility," she was told. She kept swearing and swearing. Her friend told me of the whole drama.

I kept thinking about how this would be possible. Medically, it was impossible for AA to birth SS. Coupled with the DNA results, it was glaring. But wife claiming innocence and swearing on her life was a whole different thing.

I thought of what could have been. Then I arrived at a conclusion: if wife is innocent, then she's not the mother of the child. I immediately called my friend that I've found a possible solution. MNA (maternity test) to the rescue.

They went for an MNA, and test revealed she's not the mother of the baby. Babies were changed at birth. Long story cut short, they involved the police and investigations were carried out.

Multiple tests done "here and there." They got their own baby back - AS. They returned the supposed baby. Hospital was sued for the negligence and trauma.

Wife was so displeased her husband didn't trust her. They settled and made up. They just had their second baby - a boy. Husband stayed with wife in labor room and monitored everything. Once bitten, twice shy.

At times, so called paternity fraud is change of babies at the hospital.

SOLUTION TO THE ABOVE PROBLEMS:

1. Advise your male children, to stay with their wives in the Labour wards, as their wives are delivering.

2. Advise your female children, to insist on their husbands staying in and remaining in the Labour ward, during child births.

The world of today, are full of people with evil intentions.

Together we can make the world a better place

Copied.

Haah 🙆,i never heard this thing in my life oh, what a wicked world

Switruth:
Nairaland is indeed faceless. I wish we all see each other face to face. I don’t blame you.

Lol.

Send a DM. I'll send you my house address.

Ubdavis:


Don't seek unnecessary attention by spewing trash.. what if they didn't know

Some kind of ignorance is sheer wickedness. "I didn't know" has send many people to mortuary. You should seek to know whatever will benefit you and you child, not everyday blaming witches and wizards when N200 paracetamol is all you need to cure fever.

remzytimer:
You can only try your best buy only my God can turn SS to AA let your faith be strong in God. Tell them to attend Shiloh 2023n the God of Shiloh is special in impossibilities. Just come with faith

Stop this please. Just stop.
If you want go your Shiloh, just go. I am a member though.
Stop giving people false hope

I happen to be the only AA among 10 kids.
1 AS and 8 Sickle cell siblings.
We lost 6 and I must confess it hasn't been easy.

My Parents have been married 45 years. I was 6th child but life made me first born by force. There is no month I don't spend money. I even had an agreement with a local pharmacy that sell Tramadol to me because they know I have SS siblings.

This year they both have received 3 pints of blood each to boost their PCV level.

My both Parents are old and frequent hospital for check up. I love my family and I don't blame my parents for anything. It's called life- no perfect life. That is my cross and I have carried it all through my life. I am in my 30s.

Despite being an AA I made sure my wife is also AA.

My friends wonder why I am not careless with money, but I know the responsibility I carry.

MY ADVICE
- They should eat well, do fruits regularly.
- Folic acid and vitamin C,
- Strong painkillers like ibuprofen and Tramadol (if u can get).
- If they are in crisis for up to 3 days straight, their blood level should be checked. One time my brother's PCV dropped as low as 15%, he is so tough he survived.
- They should always get medications on time ( being SS they get tired of medications and sometimes get stubborn about not taking anything, forgetting it will strain your pocket)

My sister is 40 years and my brother is 28 years.

FYI, due to their health, u will have to pickup after them all the time financially.
Lastly, they need to have strong relationship with God. Because despite all your efforts only their faith can keep them alive

As I'm talking to you now , an Enlightened and Educated bossom Engineer friend of mine is fixated on getting Married to his long time girlfriend even though they are both AS ...

There's nothing we haven't talked but they said , there's medical means of Manoeuvring the consequences and escaping giving birth to SS kids ,,, and they are poised to Chuuk head inside the Python's mouth..

Acidosis:


Your parents are very wicked.

I wouldn't say wicked, just ignorant.

Yemike:
I need people with experience on how to manage SS Crisis.
Both my parent are AS and we the kids are 5. I'm the first child and I'm lucky to be AA, the 2nd born AS, 3rd, 4th, 5th - SS.
I have 3 SS siblings and right now most of their responsibility and wellbeing is on me as the first born cuz my P-man is old already.
Just last week I have to rush down to my brother's school to bring him home cuz he called me in the middle of the night weeping cuz the pain is just too much and his roommate isn't around.
My question now is how can it be managed? cuz it's really affecting everybody cuz It's affecting their studies, I'm exhausted right now cuz anytime it happens it's ends with me borrowing funds to send to them and lastly it's sucks happiness out of the atmosphere as hearing a teenager weeping and knowing you can't do anything about it is saddening.

I've seen some people asking if they as AS can also marry AS please and please don't try it as you'll just be bringing innocent kids here just to suffer. The trauma of you seeing your kids in pain sef no be here.

How can SS Crisis be avoided/managed?

I'd have loved my write up to be well detailed but the little I wrote up there took up to an hour cuz my phone is bad.

You experience and advice will be well appreciated. Thanks.

Avoid mosquitoes, stress and eat well. Make sure you take folic acid daily and sometimes parludrin tablets

1Sharon:


I wouldn't say wicked, just ignorant.

Ignorant until they decided to abandon the three SS kids to fate.

Yemike:
I need people with experience on how to manage SS Crisis.
Both my parent are AS and we the kids are 5. I'm the first child and I'm lucky to be AA, the 2nd born AS, 3rd, 4th, 5th - SS.
I have 3 SS siblings and right now most of their responsibility and wellbeing is on me as the first born cuz my P-man is old already.
Just last week I have to rush down to my brother's school to bring him home cuz he called me in the middle of the night weeping cuz the pain is just too much and his roommate isn't around.
My question now is how can it be managed? cuz it's really affecting everybody cuz It's affecting their studies, I'm exhausted right now cuz anytime it happens it's ends with me borrowing funds to send to them and lastly it's sucks happiness out of the atmosphere as hearing a teenager weeping and knowing you can't do anything about it is saddening.

I've seen some people asking if they as AS can also marry AS please and please don't try it as you'll just be bringing innocent kids here just to suffer. The trauma of you seeing your kids in pain sef no be here.

How can SS Crisis be avoided/managed?

I'd have loved my write up to be well detailed but the little I wrote up there took up to an hour cuz my phone is bad.

You experience and advice will be well appreciated. Thanks.

I lost a sister to sickle cell 7 years ago. DM me, I'll give you a doctor's number in UBTH, He has managed some people that i know living with sickle cell, one of them is 38yrs old now and just had a baby. There is a drug my sister was always taking when she was alive, Cellod-S, if you see her when she was alive, you won't believe she was SS, her death was as a result of carelessness on our part, just a few days of looseguarding and she had a serious crisis that practically collapsed her lungs and kidneys. Never looseguard, even the slightest cough or headache could be a sign of an impending crisis.

Yemike:

You're on point. Mosquitoes are combated with mosquito net. But @ the bolded part isn't easy for this Tinubu economy but God is good sha.

If you can DM i will link you up with a colleague in the same travail, He normally get a herbal product from Jos and He confirms is working very well, but, mosquito and stress are two major triggers.

No matter how much you manage it, the crisis will always come. Most of the time it's pain relievers and prayers. In this I personally experienced the death of 5 siblings. People should know their genotype before getting married

Acidosis:


Lol.

Send a DM. I'll send you my house address.

kid!!